Nailsworth mum attempts mountain challenge for daughter
A TOUGH target has been set by a mum who is aiming to raise a mountain of charity cash for the hospital and charity which make a big difference to her daughter's life.
Becky Llewellyn is planning to walk 24 peaks in 24 hours in June to raise money for Great Ormond Street Hospital and Caring Matters Now; a charity dedicated to supporting people with Congenital Melancytic Naevi (CMN).
Her three-year-old daughter Jasmine has CMN which means 60% of her body is covered in what is effectively a birthmark.
Becky, 39, from Nailsworth plans to raise £800 to go towards research into the condition by covering 24 peaks in the Lake District in two 12 hour periods.
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"The charity has been a tremendous support," said Becky, who with other mums and supporters at St Dominic's RC primary school near Stroud is running an Easter Bazaar this Sunday to help raise funds. "I wanted to do something for both of them but I didn't just want to ask people for money, which is why we're doing the bazaar."
Large birthmarks in newborn babies are rare but can represent potential health risk - they can disfigure, interfere with the brain and spinal cord, causing development delay, fits and unsteadiness, and they can be malignant.
Luckily Jasmine hasn't suffered the most serious health risks, and her non-identical twin Saffron is unaffected.
"She is lucky in that she is a redhead and it has faded," said Becky who with husband Jon, 41, has another daughter Isabelle, 11, too.
Recent breakthroughs in gene research mean therapy could be available in more than 10 years time but for now Jasmine is a regular visitor to Great Ormond Street Hospital where she sees a specialist who is carrying out pioneering research into the causes and possible treatments of CMN. The charity and support group Caring Matters Now provides much needed support and raises the vital funds to enable the research to take place.
Becky is training hard for the challenge on June 15.
"I am walking most days, and doing three to four hour walks once or twice a week, and am working up to longer walks over whole weekends," she said.
From 1.30pm at the Inchbrook school in South Woodchester there will be teas, coffees and cakes served as well as a raffle and lots of stalls selling jewellery, clothes, books and bric-a-brac. Entry is free-of-charge.
To donate online visit www.justgiving.com/Rebecca-Llewellyn or text BEXS79 to 70070.